April's Featured Charity is Ald Life

April's Featured Charity is Ald Life 1 April 2017

Ald Life is a charity that supports sufferers of a rare and terminal genetic brain disorder, adrenoleukodystrophy (ALD).

The disorder affects previously healthy boys and men, causing loss of function, dependency and death.

ALD is a terminal condition if un-diagnosed, but treatment is available for those known to carry the gene but have not yet displayed symptoms.

Ald Life provide the following services to sufferers and their families:

Provide practical support, advice and information to patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN)

Raise awareness and improve public education into both conditions

Advance medical research looking into finding better treatment